Middlesex University



eHealth 2014 Workshop

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eHealth Workshop - October 2014

Alert Research Group

eHealth - Legal, Ethical and Social Challenges

Tues 28th - Wed 29th October 2014
Middlesex University, London

You are invited to participate in a two-day workshop on eHealth/mHealth jointly organised by Middlesex University(UK), The University of Miami (USA) and The Castlegate Consultancy (UK).

Special guest speakers

Professor Kenneth Goodman
, Professor of  Medicine at The University of Miami and past chair of the Ethics Committee of the American Medical Informatics Association and director of his institution's WHO Collaborating Center in Ethics and Health Policy.

Professor Jos Dumortier, Professor of Law, founder and first Director of the Interdisciplinary Centre for Law and Information Technology at the University of Leuven, Belgium. He has worked on numerous EU projects on eHealth and is an international expert on data protection law.

Dr. Emyr Wyn Jones,  DM FRCP,  Consultant Physician, Clinical Ambassador - National Implementation, Summary Care Records Service, Health and Social Care Information Centre, UK.

The workshop is free for all attendees, but you are expected fund your own transportation and accommodation costs. You will need to confim your attendance via the confirmation form.

Middlesex University, Committee Room 2, Town Hall, The Burroughs Hendon, NW4 4BT. See travel information below.


The use of information and communication technologies (ICT) in healthcare (eHealth) continues to bring challenges and raise concerns, especially due to continuous advances in technology. These advances provide new capabilities, for example, in providing healthcare (via mHealth, telemedicine), data storage (through electronic medical records, cloud computing), data sharing (locally, nationally and across borders) and data analysis (based on big data analytics). Policy makers and businesses continue to seek ways to use technology in healthcare to provide benefits to various stakeholders including patients, healthcare professionals, governments and business ventures. Among other European ventures, a new European Union (EU) healthcare landscape is being developed where the use of interoperable electronic health records and electronic prescriptions will allow EU citizens to access health care across the EU. Internationally, the EU and the United States of America have recently embarked on an eHealth Cooperative Initiative (involving both public and private-sector entities) to develop, deploy and use eHealth science and technology “to empower individuals, support care, improve clinical outcomes, enhance patient safety and improve the health of populations”. These and other developments in eHealth offer challenges and concerns that span the three domains of legal, ethical and social issues. Some of these relate to: data privacy, security and integrity; secondary use of data; informed consent; jurisdiction; medical liability; ICT governance; public health challenges; and the status of patients’ rights, among others. In light of the importance of healthcare to society, it is necessary to identify and discuss some of the challenges and concerns raised by eHealth, in other to find suitable ways of addressing them, and to positively influence the development of eHealth in the future.


As with our previous workshops, the format will include invited speakers, working sessions and panels.

Topics covered

Topics covered by this workshop, in relation to the legal, ethical and social challenges relevant to eHealth include (but not limited to):

·      Best practices

·      Big data and open data

·      Governance

·      Health care providers and professionals (e.g. liability, business models)

·      Health information technology

·      Information and communication technology

·      Interoperability (e.g. technical, semantic, organisational, legal)

·      Legal issues (e.g. data protection, human rights, privacy, intellectual property, liability)

·      Patient concerns (e.g. patients’ rights, autonomy, informed consent, ownership)

·      Personal health records and electronic health records

·      Public health challenges

·      Security (e.g. data storage, access, exchange, transfer)

·      Standards


Call for papers

Short 1-2 page position papers (maximum of 1,000 words) on these subjects are welcomed. The papers can and should relate particularly to research being undertaken and applications being developed or more specifically deployed in a variety of jurisdictions: e.g., in the United Kingdom, European Member States, Canada or the United States of America. Use The Cambridge Quarterly of Healthcare Ethics' format for your paper: https://journals.cambridge.org/action/displayJournal?jid=CQH.


It is anticipated that the most interesting and striking papers will be selected for development into full papers for The Cambridge Quarterly of Healthcare Ethics’ new section on bioethics and health information technology https://journals.cambridge.org/action/displayJournal?jid=CQH.


Submissions should be sent to:  info[at]thecastlegateconsultancy.com



Submission of position paper: Tuesday 30th September, 2014.

Notification of acceptance of position paper: Friday 3rd October, 2014.

Confirm attendance: Friday 10th October, 2014 (confirmation form).


A workshop programme will be published by the end of September 2014 (after acceptance of position papers).

Hotels in Hendon
Click here for a list of suitable hotels in Hendon, close to Middlesex University. We suggest staying at Hendon Hall subject to your budget.

Workshop Organisers/Committee
Dr. Carlisle George - Associate Professor Middlesex University, Barrister.
Ms. Diane Whitehouse -
 eHealth Consultant (The Castlegate Consultancy), Chair - IFIP Technical Committee 9 and IFIP WG9.2
Prof  Kenneth Goodman - Professor, University of Miami, USA.
Dr. Penny Duquenoy - Associate Professor, Middlesex University, Chair -  BCS ICT Ethics Specialist Group.



Middlesex University Hendon campus in north London is located ten minutes from the Northern Line (Hendon Central) and Thameslink rail line (Hendon Station), either of which takes you to Middlesex from central London in under 30 minutes. 

Hendon Town Hall is right next door to the Hendon campus of Middlesex University. It is ten minutes' walk away from Hendon Central, an
underground railway station on the Northern Line. Click here for information on getting to Hendon Town Hall

Click here to view the location of the university via google maps.


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